Download Family Care in HIV AIDS by Premilla D'Cruz PDF

By Premilla D'Cruz

This publication vividly describes family members care in HIV//AIDS in the course of the lived reviews of caregivers and care receivers. It contributes to our wisdom not just as a result of the modern relevance of relatives caregiving, but in addition as a result of its specialise in HIV//AIDS which, being a comparatively new ailment, is little understood but poses distinct demanding situations as a result of its stigmatising, long-drawn, debilitating and terminal nature. in accordance with a examine performed in Mumbai, kin Care in HIV//AIDS captures the lived reviews of 10 caregivers and 7 care receivers belonging to different socio-economic teams and conventional in addition to non-traditional kinfolk settings. total, the e-book offers helpful insights right into a diversity of vital matters on the topic of caregiving in kin settings whereas deciding on components for intervention and extra study. furthermore, it overcomes many gaps pointed out within the substantial region of kin care by way of Western researchers.

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Family Care in HIV AIDS

This e-book vividly describes kinfolk care in HIV//AIDS throughout the lived studies of caregivers and care receivers. It contributes to our wisdom not just as a result of modern relevance of relations caregiving, but additionally due to its concentrate on HIV//AIDS which, being a comparatively new sickness, is little understood but poses particular demanding situations as a result of its stigmatising, long-drawn, debilitating and terminal nature.

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Extra resources for Family Care in HIV AIDS

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PARENTAL CAREGIVERS Parents caring for an adult child with HIV face multiple challenges. Besides the loss of aspirations, the infection represents a lifecycle shift for them. At a time when parents may have already completed the task of or may have been in the process of launching their children and considering some of their major life tasks over, the presence of the infection and the caregiving it engenders dictate that they undergo a role reversal. They experience a disruption in the natural order of families, resuming a long discarded role as guardian or decision maker for their child.

Attempts to develop models and paradigms are also being made. However, a closer look at the studies highlights a number of THE DYNAMICS OF FAMILY CARE 39 lacunae that need to be addressed if our understanding of the phenomenon and its complexities and subtleties is to be sharpened. For example, research endeavours in family caregiving have essentially focused on families that do provide home care, rather than those that do not. They have focused, more specifically, on the primary caregiver, examining the kinds of care he/she provides, the motives for caregiving and the costs of caregiving.

According to Lesar and Maldonado (1997), if no other family member is available, foster or group home placement is required. It is estimated that 20–40 per cent of HIV-infected children now require foster or group home placement, often because birth families are too overwhelmed by their illness and lack the ability or resources to continue providing care for them. CHILD CAREGIVERS Children are the least acknowledged caregivers within the home. When one parent dies in a nuclear family, there is usually no one to look after the other parent and siblings (some of whom may be infected) and in these cases, children assume adult roles (D’Cruz 2001; UNAIDS 2000, 2001a; UNAIDS/UNICEF/USAID 2002).

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